Surveillance Research

Youth Living with Diabetes and Comorbidities Available Surveillance Data – A Status Assessment

Sachi Persaud, BAHons, David Sadleir, PhD, PEng, Elisa Venier, MD, FCFP, September 18, 2017

Overview of the Report Content

This is the fifth research initiative by SFBLF since mid 2014 to help in the fight against diabetes with a focus on youth. These initiatives have been in response to various challenges arising from:

* The relative absence of surveillance data for diabetes in youth despite widespread agreement that diabetes is rising worldwide among that cohort.

* The increasing appearance of mental illness in combination with diabetes in youth.

* The need for increased awareness and early intervention to reduce risk and help prevent or delay the onset of Type 2 diabetes and complications for both Type 1 and Type 2 in youth.

This study is intended to encourage more aggressive and timely action by others with greater resources to seek improved surveillance insights for youth. The work was part of the SFBLF Annual Summer Intern program and undertaken through May to end of August, 2017.

The Research Focus, Genesis for, and Scope of, the study are described in Section 1.0

Surveillance of any chronic disease matters for many reasons. Perhaps, the most pragmatic reason is that failure to do so and the resulting absence of insights make it very easy for the ‘problem’ to be ignored. This paper expands on Why Surveillance Matters in Section 2.0

Surveillance is a difficult and costly undertaking and to be effective requires repetition on a consistent basis and frequency. Section 2.0 also includes consideration of Why Surveillance is Difficult, identifies key data elements that need to be collected and provides a categorization for surveillance studies.

Key Findings and Conclusions are reported in Sections 3.0 and 4.0 respectively. Section 5.0, Surveillance Landscape, includes more detail from a global perspective as well as for each of the four countries studied. References and other summaries can be found in Section 6.0, Appendices.

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Ethics Statement

SFBLF is committed to:

* protecting the privacy and confidentiality requirements of all who work with us to help achieve our goals; donors, partners, volunteers as well as participants in any study undertaken by SFBLF;

* securing essential permissions, respecting rights and sensitivities of study participants;

* describing the results obtained from any study undertaken by SFBLF accurately and without bias;

* obtaining prior agreement from partners before sharing study results with third parties where applicable.



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